Fun weekend, then back to the hospital...

We had a great weekend away from the hospital with the boys. We spent Saturday morning resting up after our big day Friday, and spent a bit of time with the Miracle Flights crew. After naptime we headed out to explore the city a bit. We rode the train/subway into downtown which Jacob absolutely loved.

 He was so excited about it! We rode down to the Faneuil Hall area. There is a marketplace there so we walked around and looked a bit and ate dinner down there.

 It was a nice, relaxing evening. Sunday morning we got up and went  back downtown, this time to the Boston Common and the Boston Public Garden.  Though blanketed in snow, it was still very beautiful. I can imagine though, in springtime, it probably looks like a totally different place. (You can see how deep the snow is in this picture, as the sidewalks were cleared.)

 Now though, the pond where they do the swan boat rides is frozen. David and Jacob enjoyed it, as they ventured out on the ice (don't worry, there were many people doing this, as it is well established by the locals as safe to walk on). Jacob thought it was hilarious and had a great time. 

Jacob's favorite thing in the park was the squirrels. They (accustomed to being fed) would just come right up to you. Those of you who know him, know how much he likes giving his squirrel impression, so they were a big hit.

 We walked around the whole park, and then down Beacon street. The houses along there are amazing, and I loved it. We passed the bar from Cheers which was cool (though Jacob wasn't impressed).

 We then took the T a couple stops down and saw Trinity Church.

 It was indescribably beautiful. I really enjoyed seeing it, and felt such peace within its walls. After that, we went back to the house for the boys to nap a bit. After they woke up, we rode back down and went to a Celtics game.

 It was a lot of fun. You all know how much David and I love basketball, so it was a treat for us.  We felt like total degenerates though, when both babies fell asleep during the game.  

Once Luke woke up, he decided this outing was over, so we headed back to the house to put them to bed. It was a great weekend, but this morning, it was back to reality as we went back to the hospital for an 8am appointment with the GI specialist.  Now since Jacob does not yet have any symptoms of GI bleeding, this visit was pretty much intended to just be informative.  And it very much was.  Dr. Fox has a lot of experience treating BRBNS kids and had a lot of information for us, which we are still processing. Though he is fairly certain (as you can be without actually scoping), Jacob likely has GI lesions already, though small enough to not be causing him problems. It was good to get our questions answered and have a plan for if/when that does happen. As with our previous appointments, once we get home and I have some time to think, I will try to summarize all we have learned at Boston Children's with these amazing doctors. But for today, Just know we learned a lot, and feel confident in entrusting Jacob's future care to these specialists. 

After our appointment, we got back to the house around 11am, and went out to play in the snow! It has been out there taunting us since we got here, and Jacob finally got a chance to play in it! We had a great time, but didn't stay out too long as the boys got cold and tired. But here are a few pictures of them loving it! (most of the time)

Thank you all for continuing to follow our journey and pray for our Jake.