We had a last minute change of one of our appointments, which was moved from Monday to Tuesday. So we found ourselves with the whole day Monday to do whatever we wanted. Jacob wanted to go to the science museum, which is his favorite. The hospital also gave us tickets for a duck tour, one of the land and water vehicle tours. We did this first, and had a great time. It's a fun way to see the city, and Jacob was very excited as he even got to drive the boat a bit!
After the duck tour, we went into the Science Museum, which is one of Jacob's favorite places in the city.
We spent the rest of the afternoon playing at the museum until it closed. We headed back to the house, exhausted, and ready for an early night, since we had a full day of appointments scheduled for Tuesday.
We spent the next few hours in the pre-op clinic, and David even took a "break" and went and gave platelets (which they announced overhead that they are in dire need of) here at the blood donor center. I'm also thankful for my brother Mitch, for stopping by our local Blood Assurance in Chattanooga, and giving yesterday in honor of Jake.
We got out of preop early, and grabbed a bite to eat, and found they could see us early for our last appointment, with our Interventional Radiologist, who is our main treating doctor here. He is amazing and has done all of the Sclero procedures on Jacob here in Boston. I was very anxious about this appointment, as they had prepared us for the possibility that he would have to cancel the procedure, if there was too much scar tissue, and not enough open channels of lesion to treat. This would have put the surgical option quickly back on the table.
After our appointments, we went back and took a nap, and then got a call from our friends at the hospital that they had Red Sox/Yankees tickets that had been donated that they wanted to give us. We were so excited! We headed to Fenway, and found we had great seats, just up the 3rd base line. It was a little chilly, but hot chocolate kept us going, and it was a fun game. We explored the stadium a bit, even went on the Green Monster. The Sox played great, even had a 9 run inning with a grand slam, so it was very exiting. Best of all, right before we were about to leave, David caught a foul ball for Jacob! They both were so excited, and it was really fun, all the fans around us cheering for and high fiving Jake. It was a great experience that I think we will all always remember.
So now, we are in the waiting area, as Jacob went in a little after 8am this morning. Overall, we are happy about how things are going so far, but will not take a breath until Jacob is out of surgery today, and hopefully, we get a good report. Thank you to all who are praying for him and for us. I'm not feeling too articulate right now, as my mind is very scattered with Jacob under, but hope this quick update makes sense, as at least it provided a distraction for me. I will update again as I am able to. Again, thank you all for your prayers and support.